Gift of Life Transplant House

Today is Ginger Holmes’ last day at the Gift of Life house as she celebrates her retirement. Med City Foundation is extremely grateful to her for her partnership and mentoring spirit over the last three years. We wish her all the best in her retirement! We are also thankful to have interviewed her this Spring for this blog to capture her spirit and dedication to Gift of Life Transplant house.

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Gift of Life Transplant House started collaborating with the Med City Foundation one and a half years ago, and have been working closely together ever since. The Gift of Life Transplant House was started 1984 by Edward Pompeian, a two-time kidney transplant recipient, as a small eight bedroom home. Since then Gift of Life Transplant House has had three additions, now with a total of 87 beds, making them the largest transplant home in the country.

They provide a homelike setting for transplant patients and their caregivers to stay in Rochester during the time of the transplant. Each guest receives their own room to share with one or two additional caregivers while living areas like the TV room, kitchen, and dining room are all shared. The patients are going through similar experiences, and the shared spaces encourage support between patients and families.

Perhaps the most important part of the Gift of Life Transplant House’s mission is the sense of family and community within the house. Guests are welcome to stay as long as they need, and have been known to stay anywhere from three days to over three years. No one is ever turned away from the house, and if all rooms are filled, the house works to find an alternative for the patient and caregivers to stay such as a hotel at a reduced rate.

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Although Gift of Life Transplant House historically only worked with organ transplant patients, they have recently expanded to welcome blood cancer patients to stay at their facilities if rooms are available. One of the biggest problems with blood cancer patients treatments is that they are long lasting causing many of these patients to be turned away from other housing options liked the Hope Lodge run by the American Cancer Society. Therefore, Gift of Life Transplant House opened their doors to them. Med City Foundation works closely with the transplant house to finding housing for the patients and their families when their locations are at capacity and vice versa.

In 2014, the Gift of Life Transplant House served 4,500 patients and their caregivers. In the next one and a half years, the transplant house is looking to expand and add approximately thirty new beds with additional kitchen, living room, and dining room spaces. The Med City Foundation and the Gift of Life Transplant House are committed to addressing the needs of blood cancer patients in Rochester area.

 

GOLGinger Holmes is the executive director of the Gift of Life Transplant House and oversees the operation of the home. She started as a volunteer at the Gift of Life Transplant House in 2010 and was then asked to serve on the board. In 2012, she was asked to be the executive director and has remained in that position ever since. Ginger says the best part of her job is seeing all the smiles from the patients and seeing their excitement when they get that call that they are getting a transplant.

 

 

Gift of Life Transplant House

Patient Stories: Aria

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Blood cancers not only affect the individuals diagnosed, but also their families, emotionally and financially. Aria’s story exemplifies this.

She lives in Minneapolis, Minnesota, with her husband and young son. Her husband was diagnosed with multiple myeloma and found out about Med City Foundation through a Mayo Clinic social worker. Med City Foundation provided Aria’s family with emotional and financial support through gas and grocery gift cards. Although her husband was the only one that had to endure the physical discomfort of the treatments, they all had the emotional and financial strain.

Aria and her family had to relocate to Rochester for 10 weeks during the time of her husband’s treatment in order to stay within a half hour of the hospital (a requirement the medical team insisted upon). The relocation had a large impact on her and her family, causing Aria to be the primary caregiver of her husband and their son, who turned eight years old during this time. Their son had to leave his home, friends, school, and activities to spend every day in a medical setting, which concerned Aria and her husband tremendously. In addition to being the caregiver, Aria had to take on the role of home schooling their son. Also, her step-daughter, currently attending graduate school, had to travel to see them, and she was not able to spend much time with her family as she also had obligations to school and work.

In addition to the emotional strain, there was also a financial burden. Aria and her husband both had to leave their jobs in Minneapolis because of the diagnosis. Med City Foundation was able to alleviate some of these financial worries by providing the family with grocery and gas gift cards, as well as including them in the holiday gift program, which provides families with Christmas gifts and is made possible because of generous donors. This program meant a lot to the family especially for their son because it showed that someone cared.  

Although it is difficult to give blanket advice due to different situations of every patient, Aria offered, “I would maybe encourage people to remember that this is only a chapter of your life and hopefully you’ll be going home and getting back to what you enjoy soon.”

 

Patient Stories: Aria

Students Share Stories of Patients and Those Supporting Patients

About twice a year my mom, and fellow board member, approaches me to work with students at the University of Minnesota-Rochester through their Co-Lab class. This unique class partners students with local organizations to complete projects throughout a semester. In previously, groups have helped me to create a community guide for patients and their family members as well as developing the blueprint for a volunteer program.

When mom approached me around Christmas to participate in the upcoming term I said “NO!” I didn’t have time to devote to the students and was juggling amount a million other things. However, in true “mom” form, she continued to pursue it and eventually I gave in. She had an idea that was interesting and so I thought we should give it a try.

Fast forward several months and I am sitting down with four young women, brainstorming on this great project idea. What they were planning on doing was creating a volume of blog posts, not just to talk about Med City Foundation, but about the patients, their families, and the experience of being in Rochester for care. They decided they also wanted to talk to other organizations to hear how they were serving patients.

The end result? Amazing. I am not generally a woman of few words, but I don’t have much more to say than that.

Meet McKenzie, Julie, Maggie, and Kristie. Over the next several months, their interviews will be shared on this blog so that you too can experience these patient’s lives and those trying so hard to support them.

 

UMR students

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Students Share Stories of Patients and Those Supporting Patients

What is Med City Foundation? 10 facts I would like you to know.

I am incredibly thankful to my friends , family, and community who have supported Med City Foundation in so many different ways. It might be attending a fundraiser, or sharing my posts on Facebook, or just listening to me rant and carry on. However, I am amazed at how many of these people will later ask me, ” What is Med City Foundation?” or “What do you actually do?” I generally respond with my well rehearsed mission statement and a quick sentence or two about current projects we are working on. However, I don’t often feel like that is enough. So, today I am going to give you the “down and dirty” basics of this amazing organization and why it means so much to me with 10 quick facts:

  1. I, Kristina Hesby, opened Med City Foundation in March 2014. I am a nurse, with no business or non-profit leadership background.
  2. We are 100% volunteer-led with myself carrying about 75% of the workload, and our working board of directors supporting me with 25% of the work but 100% of the encouragement and love I need to stay motivated.
  3. We support any patient and their caregivers that are affected by blood cancers, which are leukemia, lymphoma or myleoma.
  4. My dad died from leukemia in 1995, I was nine years old, and I do this in his memory.
  5. We will give people cash assistance, however the majority of our assistance is in the form of gift cards to gas stations and restaurants.
  6. Patients can self-refer and request assistance, however we always confirm the diagnosis with someone from Mayo Clinic and most of our referrals come directly from the healthcare providers in the hospital .
  7. The blood cancer patients many times are here for months, due to chemo, stem cell and bone marrow transplants and then monitoring labs. Monitoring labs are the hardest for many of these patients because they need to come in maybe 1-2 times per week but the remaining time they are left in our community, with little to do, away from their loved ones.
  8. We do not qualify for many grants because we provide financial assistance, so most large grantors do not want to give us money, to just have us turn around and give it to someone else. Therefore, we depend 100% on our donors and fundraising events for our funding.
  9. In our first year, we served about a dozen patients, last year it was just over 30 patients, and this year it will be close to 35 or 40, however the type of assistance has changed dramatically (i.e. provided larger amounts of assistance as well as providing nights of stay versus just cash assistance).
  10. We lease two properties in town, an apartment in the 318 Commons Building (above the Loop) and a two-bedroom home on 11th Ave NE (near Quarry Hill Animal Hospital). The apartment is free for patients and the house is $750 per month. Both properties include all utilities, cable, internet, and are completely furnished with linens, paper products, and non perishable food items

There you have it. That was painful because I really have 100 things I want to tell you about Med City Foundation. Brendan Bush produced an amazing video last year that interviewed a few of the patients we have worked with and I think he did an amazing job of sharing the mission. You should check that out as well:

 

 

What is Med City Foundation? 10 facts I would like you to know.

Board Member Profile: Margaret Senn

Board Member profiles will be a bi-monthly feature of the men and women who help MedCity Foundation reach those in need within our community, spread the MCF vision and dedicate their time to support blood cancer patients and their families.

Full Name: Margaret Senn

Current title/company: Informatics Nurse Specialist at Mayo Clinic

Length of time on MCF Board: Founding board member 2014

How did you get connected with Med City Foundation and how did you become interested in its mission?

Meet Kristina at an Expo, had a friend who developed cancer and it was a good fit.

Margaret Senn

What is your current role within Med City Foundation?

Board member, Community Expo Coordinator

How do you hope to see Med City Foundation evolve over time?

It will grow and be able to fund more patients and families. Having our own house for these people would be a long term goal.  

What have you learned from being on Med City Foundation?

All of the hoops a non-profit has to go through to get that status.

What is the most rewarding part of being apart of Med City Foundation?

The people I work with and knowing we are helping those that need help.

What is your advice to people who want to become more involved? Volunteer your services and or your time.

Best moment on MCF board so far: Learning from the other board members

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Now, time for a few fun questions:

Morning or night person?: Morning

 Best piece of advice ever given: Remember the special times and forget the bad

 Perfect weekend?: At the cabin with husband and no other family

If you could have lunch with one person, who would it be and what would you order?: My mother, probably a salad.

Board Member Profile: Margaret Senn

Board Member Profile: Chad Behnken

Board Member profiles will be a bi-monthly feature of the men and women who help MedCity Foundation reach those in need within our community, spread the MCF vision and dedicate their time to support blood cancer patients and their families.

 Full Name: Chad Behnken

Current title/company: Think Mutual Bank–Business Advisor

Length of time on MCF Board: Joined 2015

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 How did you get connected with Med City Foundation and how did you become interested in its mission?

I got connected through Kristina and instantly became interested in the mission upon hearing about it.

What is your current role within Med City Foundation?

Board Member 

How do you hope to see Med City Foundation evolve over time?

I see the foundation growing steadily by creating more awareness which ultimately will allow more people to be served.

What have you learned from being on Med City Foundation?

That there is a need in our community that is not served that needs to be.

What is the most rewarding part of being apart of Med City Foundation?

Knowing that I am helping people that are in need.

What is your advice to people who want to become more involved?

Reach out to Kristina or a board member. There are so many ways to help and become involved, every little bit helps.

Best moment on MCF board so far: Learning about this wonderful mission and meeting and working with a wonderful team of board members.

Chad Behnken

 Now, time for a few fun questions:

Morning or night person?: Morning

Best piece of advice ever given: Be respectful of people as you never know what kind of personal battle they are currently going through.

 Perfect weekend?:  Spending time with my family. I am married with two small children 6, and 8, and time with them is very important.

 If you could have lunch with one person, who would it be and what would you order?: Jimmy Fallon. I like people that have a positive outlook on life and use that attitude to do good in the world. Ideally the dinner would take place in a pub with a great selection of pub food.

Board Member Profile: Chad Behnken

Board Member Interview: Cory Simonson

Board Member profiles will be a bi-monthly feature of the men and women who help MedCity Foundation reach those in need within our community, spread the MCF vision and dedicate their time to support blood cancer patients and their families.

Full Name: Cory Simonson                       

Current title/company: Broadway Residence

Length of time on MCF Board: 1 yr       

Cory Simonson      

How did you get connected with Med City Foundation and how did you become interested in its mission?

Hearing Kristina speak at a AM Expresso event hit home as my son Carter (age 7) was diagnosed with T-cell Leukemia in December of 2013. During these difficult times since Carter’s diagnosis, our family has experienced amazing support from friends, family, neighbors and even complete strangers. MedCity Foundation felt like a perfect opportunity to pay it forward.

 

What is your current role within Med City Foundation?

Board member

 

How do you hope to see Med City Foundation evolve over time?

I would like to see the support part of MedCity grow as I believe it is vital in the road to well- being.

 

What have you learned from being on Med City Foundation?

There are many giving and caring people in our world striving to make a difference.

 

What is the most rewarding part of being apart of Med City Foundation?

Knowing that a difference is being made in the lives of others during very challenging and trying times.

 

What is your advice to people who want to become more involved?

Please! There are so many ways that you can help and make difference.

Best moment on MCF board so far: The Blizzard Bash

 

Now, for some fun questions:

Morning or night person?: night

Best piece of advice ever given: Tomorrow is not promised

Perfect weekend?: On a lake fishing while spending time with my boys and wife

If you could have lunch with one person, who would it be and what would you order?: Donald Trump – Surf and Turf

 

 

Board Member Interview: Cory Simonson